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Testing, or at risk Discuss testing for Huntington’s disease, and living with the risk of HD

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Old 23-07-08, 03:22 PM   #11
just1moreperson
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Default Re: Hi I'm Pat

If that wasn't such a serious blood test **** up, it would be comic gold!

Welcome to the board Pat, glad to have you here.

Where's this god damn introduction section Tom suggested???
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Old 23-07-08, 03:49 PM   #12
Patrick
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Thanks for the warm welcome!
I was a tad annoyed at the docs, but ive got over it now. Its strange because I've read a few other threads and ppl are saying theyve had to go to counselling before they could get tested, and I remember that my uncle also needed to see a councilor, he also needed my dads doctor to send proof that my dad was HD+ before any tests would be done, but out here in the states ive ordered a HD test like I was ordering a Big Mac (cept they got the order wrong and gave me a Chicken Burger instead!) But what i mean is that ive not had any councelling, I didnt need any proof that my dad was HD+, I just walked in and asked to be tested.
I dont think I need any counselling anyways, i'll accept whatever fate throws at me, and will just aim to make the most out of life. Even if I do have it, ANYTHING could happen between now and when I get symptomatic so I'm not gonna let it get me down (too much) if I am HD+. Last week for example my mate gave me a lift home, some plonker on his mobile burned the red traffic light and missed me by inches, my life flashed before my eyes.. I thought to myself how ironic is that.. im worrying about dying from hungtingtons and I was totally oblivious to the fact that almost everything we do in life on a daily basis has an element of risk to it.. Anyways thats my outlook, I think its good to be as positive as possible.
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Old 23-07-08, 04:48 PM   #13
Toni
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Hi,

I think you have a such a great attitude towards the risk of having HD. You seem to be completely prepared for whatever the result may be and thats so good, I wish I was like that when I was going through the testing process. I had about a year of counselling before being tested.

I really hope you get a good result next week.

Take care
Toni x
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Old 23-07-08, 07:41 PM   #14
Jester
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Hi Pat

Welcome to the forum.

I'm sorry to hear about your Dad and all the hastle you are going through with your test results. I'm also 33 and my Dad has HD and I'lm HD positive. I went through something fairly similar with my testing in that, I went through all the month's of councelling, was just about to have my test done, but moved out of the area. They wouldn't let me go back for the test, so I had to get the test done, in the new area. Initially I was told I could just get the test done, they then deicided they wanted me to go through the whole coucelling again!! So it took several months longer before could get the test done.

So I have every sympathy for the way they are messing you about. I hope the nest week doesn't drag too much and good luck for the results and let us all know how it goes.
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Old 23-07-08, 08:09 PM   #15
DH
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Originally Posted by Patrick View Post
I dont think I need any counselling anyways, i'll accept whatever fate throws at me, and will just aim to make the most out of life. Even if I do have it, ANYTHING could happen between now and when I get symptomatic so I'm not gonna let it get me down (too much) if I am HD+. Last week for example my mate gave me a lift home, some plonker on his mobile burned the red traffic light and missed me by inches, my life flashed before my eyes.. I thought to myself how ironic is that.. im worrying about dying from hungtingtons and I was totally oblivious to the fact that almost everything we do in life on a daily basis has an element of risk to it.. Anyways thats my outlook, I think its good to be as positive as possible.
Have you cut'n'pasted from my diary? You sound EXACTLY like me....

I've got to dash now but I'll fill in some more later.
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Fetchez la vache.
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Old 23-07-08, 08:38 PM   #16
Patrick
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Have you cut'n'pasted from my diary? You sound EXACTLY like me....

I've got to dash now but I'll fill in some more later.
You have a diary!? this i'd like to read!
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Old 23-07-08, 08:51 PM   #17
katiepie
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Heh DH is always trying to get himself run over, who wants to read that?

oki so I would.....
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Old 23-07-08, 09:04 PM   #18
Patrick
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na.. he's just living life to the max, I love his sense of adventure!
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Old 23-07-08, 09:24 PM   #19
frankie
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Hi Pat,

Welcome and yes you have a great sense of humour. Best way to be be . They certainly did get it wrong giving you a chicken burger instead of a big mac!!!! I hope you are lowering your cholestral by the way and staying away from burgers altogether.

Fingers crossed for next Wednesday for you.
Take care
X
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Old 23-07-08, 09:31 PM   #20
frankie
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Hi Jester

How are you getting on now? Have they finished their tests? You have your wedding soon to look forward to.
x
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